You acknowledge that the materials on the Sites are provided "as is" for general information only and without warranties of any kind. The materials on the Sites are not meant to be used for self-diagnosis or to replace the services of a medical professional. Healthcare information changes rapidly and thus the materials on the Sites should not be relied upon to be fully comprehensive or error free. CURE does not recommend, endorse or make any warranties or representations of any kind with regard to the accuracy, completeness, timeliness, quality, efficacy or non-infringement of any of the information provided on the Sites or by the companies or organizations linked or referred to in the Sites.
The Sites do not offer medical advice or recommendations to individuals and you should not rely on the information posted on the Sites as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. CURE does not advocate that you attempt to treat yourself, your family or someone you know without proper medical supervision. CURE encourages you to seek the guidance of your healthcare provider if you feel that you, your family or someone that you know suffers from the conditions described on the Sites.
In certain instances, CURE permits third parties to provide testimonials and information, and in certain situations, create personal home pages for fundraising purposes in furtherance of our mission. CURE may from time to time post articles and other information provided by third parties that might be of interest or benefit to the public. You acknowledge that the opinions and recommendations of third parties contained on the Sites are not necessarily those of CURE or endorsed by CURE.
You agree that you will hold harmless CURE, its officers, directors, employees, volunteers, licensors and suppliers from all claims arising out of or related to your access or use of, or your inability to access or use, the Sites or other sites to which they are linked.
Limitation of Liability
Links to Other Sites; Link Agreement
CURE may provide links to other Internet sites or resources. CURE likewise may permit others to post on certain public forums links to other Internet sites or resources. The information provided to you in such links are provided solely for your interactive enjoyment. The results are not guaranteed to be accurate and are in no way endorsed, offered or guaranteed by CURE.
You should be aware that links to the Sites may be provided from other sites, either known or unknown to CURE, and some links to the Sites may be unauthorized, and accessing any other site linked to or from the Sites is done at your own risk. CURE has not reviewed and is not responsible for the content of any third party sites linked to or from the Sites.
Disclaimer of Warranties
THE SITES (INCLUDING WITHOUT LIMITATION ALL SERVICES AND CONTENT) ARE PROVIDED "AS IS" AND "WITH ALL FAULTS" WITHOUT WARRANTY OF ANY KIND AND THE ENTIRE RISK AS TO SATISFACTORY QUALITY, PERFORMANCE, ACCURACY AND EFFORT IS WITH YOU. There is no warranty, representation or guarantee that the Sites will continuously operate or be error free or that any problems will be corrected, or that any information, software or other material accessible from the Sites is free of viruses, worms, trojan horses or other harmful components. Further, we do not warrant, guarantee, or make any representations regarding the use of, or the results of the use of the Sites either in terms of its compatibility with hardware or other software, its reliability, currentness, or otherwise; and you rely on the Sites solely at your own risk. ANY AND ALL OTHER REPRESENTATIONS AND WARRANTIES INCLUDING BUT NOT LIMITED TO ANY IMPLIED WARRANTIES OF MERCHANTABILITY AND/OR FITNESS OF THE PRODUCT FOR A PARTICULAR USE OR PURPOSE, QUALITY, COURSE OF DEALINGS, USAGE OF TRADE, INACCURACY IN CONTENT CAUSED BY OUR FAILURE TO PERFORM WITH REASONABLE CARE, QUIET ENJOYMENT OR NON-INFRINGEMENT ARE HEREBY EXPRESSLY DISCLAIMED.
THE SITES ARE MANAGED IN THE STATE OF ILLINOIS, UNITED STATES OF AMERICA. CURE MAKES NO REPRESENTATION THAT IT OPERATES (OR IS LEGALLY PERMITTED TO OPERATE) IN ALL GEOGRAPHIC AREAS. CURE MAKES NO REPRESENTATION THAT THE SITES, SERVICES OR INFORMATION FOUND THROUGH THE SITES OR SERVICES IS APPROPRIATE OR AVAILABLE FOR USE IN ALL GEOGRAPHIC LOCATIONS, AND ACCESSING THE SITES FROM TERRITORIES WHERE THE CONTENT OF THE SITES IS ILLEGAL IS EXPRESSLY PROHIBITED. IF YOU VIEW THE SITES AND/OR ACCESS THE SERVICES FROM ANY COUNTRY OTHER THAN THE UNITED STATES OF AMERICA, YOU ACKNOWLEDGE THAT YOU ARE DOING SO ON YOUR OWN INITIATIVE AND YOU ARE SOLELY RESPONSIBLE FOR COMPLIANCE WITH ALL APPLICABLE LAWS.
Your privacy is important to us. To protect your privacy, we provide this notice explaining our information practices and the choices you can make about the way your information is collected and used.
Personal Data (also referred to in this policy as Personal Information) means any information relating to a natural person who can be identified by reference to an identifier such as a name, an identification/account number, location data, an online identifier, or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural, or social identity of that person.
Personal Information We Collect
When you visit the Sites, there are five types of information you might provide to us: contact information you knowingly choose to disclose; registration information when registering for an event, billing information when you donate, join, subscribe, or make a purchase; demographic or other information about you; and technical information collected by us as you interact with our websites.
In some areas of the Sites, we request that you provide personal information, such as your name, address, e-mail address, and telephone number.
Donor and Purchaser Information
In some areas of the Sites, we request that you provide your credit card number, contact information, and other billing information.
In some areas of the Sites, we request that you provide personal information, such as your name, address, e-mail address, and telephone number.
In some areas of the Sites, we collect demographic information such as your age, preferences, gender, educational degrees, background, interests, health conditions, and epilepsy affiliation. Sometimes, we may collect a combination of information types. Sometimes we may combine that information with commercially available data. Examples of areas of the Sites where we may collect personal or combined personal and demographic data are pages where you can donate to CURE, register for a program or event, apply for a scholarship, or share a personal story.
Use of Personal Information
The information collected may be used by CURE for the purpose of providing you with the content you request, operating and improving the Sites, providing a positive user experience, and delivering the products and services that we offer.
We may also use the information we gather to inform you of other products or services available from the Sites or to contact you about your opinion of current products and services or potential new products and services that may be of interest to you.
We may use your contact information in order to send you e-mail, postal mail, texts, phone calls, online advertising, or other communications regarding CURE, such as newsletters, epilepsy information, event and programmatic information which may be of interest to you. We may also use it to send you information about third-party products and services that match your interests and preferences. The nature and frequency of these messages will vary depending upon the information we have about you. In addition, at the time of registration for certain services, you have the option to elect to receive additional communications, information, newsletters, and promotions relating to topics that may be of special interest to you.
Part of our mission is to improve the lives of all people affected by epilepsy, and we do that by providing appropriate information. We do not provide your name and address or email to outside parties, except as described here. To learn more about our encryption policies, please review the section on "Protecting Personal Information" (below).
Retention of Personal Information
We retain indefinitely all the personal information we gather about visitors or subscribers as necessary to fulfill our service to you. We retain indefinitely certain anonymized information we gather about visitors or subscribers for the legitimate purpose of performing website analytics and providing use of our website to all visitors in an efficient, practical, and relevant way. If there has been no activity from you for ten years, your data that is no longer required will be purged.
Sharing of Personal Data
We do not share or disclose your personal information to third parties except as set forth below:
Purpose for Sharing
With CURE business partners for the purpose of understanding usage patterns for Sites and those of our partners.
With web hosting and other technical service providers for the purpose of hosting our web servers and ensuring information security for our networks.
With consultants and vendors for the purpose of providing customer support and marketing assistance.
With credit card processors for purposes of processing credit card transactions in connection with the donors and subscriber’s contract with the Sites.
With our business partners, with your consent, for the purposes of providing you with products or services tailored to your interests and preferences.
In addition, we disclose personal information if legally required to do so, if requested to do so by a governmental entity, or if we believe in good faith that such action is necessary to: (a) conform to legal requirements or comply with legal process; (b) protect the rights or property of CURE; (c) prevent a crime or protect national security; or (d) protect the personal safety of users or the public.
In the event any one or all of the Sites become the subject of a bankruptcy proceeding, whether voluntary or involuntary, CURE or its trustee in bankruptcy may sell, license, or otherwise dispose of such information in a transaction approved by the bankruptcy court as is legally required.
In the event that CURE’s business is acquired in whole or part by a third party by way of merger, consolidation, or purchase, we will disclose and transfer such information to the third party.
CURE may also share aggregated anonymous information about visitors to Sites with its clients, partners, and other third parties so that they may understand the kinds of visitors to the Sites and how those visitors use the site.
Information You Post
If you post any personal information in public and/or social network areas of the Sites, e.g., in the Personal Stories section or blog, the information disclosed may be displayed to other users of these services and may be collected and used by others over whom we have no control. CURE is not responsible for the use made by third parties of information you post or otherwise make available in public areas of the Sites and communities. If you remove information that you have made public on Sites and communities, copies may remain viewable in cached and archived pages of the Sites or if others have copied or saved that information.
Opt-In and Opt-Out Choices
The registration forms and other sections of the Sites where we collect your information provide you with relevant opt-in and opt-out choices regarding promotional activity and other communications with you.
E-mail to Donors and Participants: Donors to CURE and Participants of CURE events and programs may opt in for first- and third-party informational e-mails or opt out of all e-mail communication, except transactional emails, such as donation receipts and event/program specific information registered. To opt-out, click the unsubscribe link in an email or contact email@example.com.
E-mail to Subscribers
Subscribers to CURE publications may also opt in for first- and third-party informational e-mails or opt out of all e-mail communication (with the exception of subscription renewal information) by unsubscribing or contacting CURE at firstname.lastname@example.org.
The above are examples of opt-in/opt-out options and are not intended to describe every option on the Sites.
Monitoring of Information and Cookies
We monitor customer traffic patterns and site usage to help us develop the design and layout of the Sites. We may also use the information we collect to occasionally notify you about important changes to the Sites, new services or features offered by CURE, and special offers and information we think you will find valuable. If you would rather not receive this information, please contact us at email@example.com.
Google Analytics and Hot Jar are used to analyze traffic to this website. Google Analytics and Hot Jar do not maintain individual profiles for visitors, nor does Google Analytics or Hot Jar collect data that might identify the individual visitor. Google Analytics and Hot Jar only collect aggregate data.
We collect standard information, by way of a cookie, to help us evaluate how our sites are being used. A cookie is a small uniquely identifiable text file that is stored on your machine. A cookie collects information that is used for statistical purposes and does not identify you in any way.
Most web browsers automatically accept cookies, but you can change your browser settings to prevent that. Even without accepting cookies, you can still use most of the features throughout the Sites.
Often times, we may use certain advertising networks and exchanges that participate in the Network Advertising Initiative (NAI). NAI has developed a tool that allows consumers to opt out of certain interest-based advertising delivered by NAI members’ ad networks. To learn more about opting out of such targeted advertising or to use the NAI tool, click here. Please be aware that such opt-outs do not affect non-targeted ads. We are not responsible for the effectiveness of, or compliance with, any third-parties’ opt-out mechanisms or programs, or the accuracy of their statements regarding their programs.
Protecting Personal Information
We are concerned with protecting your privacy and data. When you make a donation, register for an event or program, place orders, access your account information or request information, we use a secure server. This secure server software, SSL (Secure Sockets Layer), encrypts all information you input before it is sent to us. Furthermore, all customer transactional data we collect is protected against unauthorized access with the use of digital certificates.
We provide reasonable technical, administrative, and physical controls to secure the confidentiality, integrity, and availability of personal information. If you have any questions about security on the Sites, you may contact us at firstname.lastname@example.org.
All credit transactions occur in a secure area of our site to protect you from any loss, misuse, or alteration of information collected. When you make a donation, subscribe or place an order online at any of the Sites, your credit card information is protected through the use of encryption of web content using Transport Layer Security.
Policies Regarding Disclosure of Personal Information
CURE, like many other non-profit organizations, occasionally makes available our contributor and subscriber names and postal addresses to other non-profit organizations and for-profit companies. These organizations and companies are carefully screened.
Names/addresses are provided on a one-time basis; therefore, these companies will not have continued access to your name and address unless you respond to them directly, which you are free to do or not to do.
You can request that we do not share, sell, or exchange your information for third party's fundraising or marketing purposes by emailing us at email@example.com. (If you use more than one email address, postal address or telephone number, please identify each one.)
CURE may also provide aggregate statistics about our customers, sales, traffic patterns, and related site information to reputable third-party vendors, but these statistics will include no personal identifying information.
Our Commitment to Children's Privacy
CURE does not knowingly solicit data from children or knowingly market to children. CURE is concerned about the safety of children and their use of the Internet. Therefore, in accordance with the U.S. Childrens' Online Privacy Protection Act of 1998, we do not knowingly request or solicit personally identifiable information from anyone under the age of 13 without prior verifiable parental consent. In the event that CURE receives actual knowledge that it has collected such personal information without the requisite and verifiable parental consent, CURE will delete that information from the Sites as quickly as is reasonably practical.
CURE does not send unsolicited commercial communications to individuals with whom CURE does not have consent/permission or a pre-existing or current relationship. CURE provides a clear, easy and effective method to unsubscribe to any and all online communications.
How to Correct or Update Information
Here are the options for changing and modifying information previously provided.
Email firstname.lastname@example.org or send a letter to: Citizens United for Research in Epilepsy 430 W. Erie, Suite 210 Chicago, IL 60654
Where to address your questions or complaints
If you have any concerns as to how your data is processed, you can contact: Citizens United for Research in Epilepsy 430 W. Erie, Suite 210 Chicago, IL 60654 E-mail: email@example.com
Changes to Privacy Statement
If we change our Privacy Statement for the Sites, we will post those changes here so that you will always know what information we gather, how we might use that information, and to whom we will disclose it. We welcome your comments concerning this Privacy Statement. Subscribers who believe that we have not adhered to this statement may contact us by e-mailing us at firstname.lastname@example.org. Non-subscribers may also contact us at email@example.com. We will use commercially reasonable efforts to promptly determine and remedy the problem. Thank you for using the Sites.
CURE reserves the right to share your information to respond to duly authorized information requests of governmental authorities or where required by law.
Privacy of Patient Information
The Health Insurance Portability and Accountability Act ("HIPAA") may regulate and limit the use and disclosure of your private health information by certain healthcare institutions. However, you should know that the HIPAA regulations apply to information gathered in the treatment of patients and not to information gathered by or through the Sites.
Under California Civil Code Section 1798.83 (also known as S.B. 27), if you are a California resident and your business relationship with CURE is primarily for personal, family, or household purposes, you may request certain data regarding our disclosure, if any, of personal information to third parties for the third parties’ direct marketing purposes. To make such a request, please send an e-mail to firstname.lastname@example.org with “Request for California Privacy Information” in the subject line. You may make such a request up to once per calendar year. If applicable, we will provide you, by e-mail, a list of the categories of personal information disclosed to third parties for their direct marketing purposes during the immediately preceding calendar year, along with the third parties’ names and addresses. Please note that not all personal information sharing is covered by S.B. 27’s requirements.
Acceptance of These Terms
Your use of the Sites shall indicate your understanding and acceptance of the terms of this Privacy Statement. If you do not agree with all the terms herein, you should not use the Sites or services.
Restrictions on Use of Materials
Posted or Shared Content
You may post or share messages, text, photos, testimonials or other content (including, without limitation, information that you provide about health status) on the Sites via your Personal Home Page, Personal Story, or any page on the Sites that specifically provides that the content may be used in a public manner. If you post or share such content, you certify that you have reached the age of consent in your community or that you are at least 13 years old and are posting with the permission of a parent or guardian. Any such content submitted to CURE will be treated as non-confidential and non-proprietary, and you authorize CURE and its affiliates and licensees, without compensation to you or others, to copy, reproduce, incorporate, distribute, publicly display, publish or otherwise use all or any part of such information in furtherance of its operations and our mission throughout the world in any format or media (whether now know or hereafter created) for the duration of any copyright or other rights in such content, and such permission may not be revoked for any reason. To the extent permitted under applicable law, you waive and release and covenant not to assert any moral or privacy rights that you may have in any such content posted or shared by you. By posting or sharing such content, you represent to CURE that you own or have the right to use and permit CURE to use such content in the manner stated above. By way of example and not limitation, if you post a photograph of yourself with others, you need to first obtain permission or a release from the other people appearing in the photograph to use their image on your Personal Home Page, and you need to be the owner or licensee of the copyright in the photograph. You agree not to post or share any information relating to or photographs or text that belongs to any person other than yourself or that contains the name, voice or likeness of any person other than yourself unless you first obtain permission to do so from that person. If you identify yourself by name or provide a picture or audio or video recording of yourself, you further authorize CURE and its affiliates and licensees (without compensation to you or others) to reproduce, print, publish and disseminate in any format or media (whether now known or hereafter created) your name, voice and likenesses in furtherance of CURE's operations and our mission throughout the world, and any such permission cannot be revoked for any reason. CURE reserves the right to refuse to post or share content, remove content, or disable your account due to: (i) the high-risk nature of a proposed fundraising activity (e.g. bungee jumping, parachuting, hand gliding, cliff diving); (ii) the potentially negative impact on CURE's public image due to a proposed fundraising activity or posted or shared content; or (iii) any other reasonable factor as determined by CURE in its sole discretion.
Availability of Service
CURE reserves the right to establish general practices and limits concerning the Services and user accounts at any time (and may modify such practices and limits at its sole discretion), including without limitation the maximum number of days that your or any third-party's information, pictures, content or email will be retained and the maximum amount of disk space that will be allotted on CURE's servers on your behalf. Without limiting the foregoing, you agree that CURE shall have no responsibility or liability for the deletion or failure to deliver or store your Personal Home Page or any other public forum, or any information, pictures, content or email provided by or stored by you on your Personal Homepage or any other public forum, regardless of whether such deletion or failure was due to the established practices or limits of the Services or as a result of error, intentional misconduct, or negligence of CURE. You acknowledge that CURE reserves the right to log off accounts that are inactive for an extended period of time and reserves the right at any time, and from time to time, to modify or discontinue, either temporarily or permanently, the Services (or any part thereof) with or without notice. You agree that CURE shall not be liable to you or to any third party for any such modification, suspension or discontinuance of the Services.
Deactivation of the Sites
Shopping Cart Purchases & Online Donations.
Term & Termination
Dispute Resolution and Remedies
Governing Law; Venue; Statute of Limitations
CURE may choose to acknowledge certain persons and companies who have provided donations or sponsorships in furtherance of our mission. Such acknowledgement may be in the form of recognition on the Sites by use of such persons or companies' own names or marks and/or links to such person or companies' own websites. However, CURE does not solicit or permit the purchase or use of advertisements or commercial endorsements on the Sites by any person or company (including, without limitation, its sponsors and donors). If you choose to click on the links to any of our sponsors' websites or otherwise engage in any correspondence or business dealings with or other purchase of products or services from any of our sponsors, you do so on your own initiative and you agree that CURE is not responsible or liable for any loss or damages of any sort incurred as a result of any such dealings or as a result of the acknowledgement of or links to such sponsors in conjunction with the Sites.
Notice of Claims of Intellectual Property Violations
A physical or electronic signature of a person authorized to act on behalf of the owner of an exclusive right that is allegedly infringed.
Identification of the copyrighted work or mark or publicity right claimed to have been infringed, or, if you believe that multiple works, marks or publicity rights have been infringed on the Sites, a representative list of such works, marks or publicity rights.
Identification of the material that is claimed to be infringing or to be the subject of infringing activity and that is to be removed or access to which is to be disabled, and information reasonably sufficient to permit CURE to locate the material.
Information reasonably sufficient to permit CURE to contact you, such as an address, telephone number, and, if available, an electronic mail address at which you may be contacted.
A statement that you have a good faith belief that use of the material in the manner complained of is not authorized by the owner, its agent, or the law.
A statement that the information in the notification is accurate, and under penalty of perjury, that you are authorized to act on behalf of the owner of an exclusive right that is allegedly infringed.
CURE's agent for the notice of any claim of infringement of any copyright or trademark or right of publicity is its General Counsel, who can be reached, as follows:
By mail: Citizens United for Research in Epilepsy Attention: Legal Department 430 W. Erie, Suite 210 Chicago, IL 60654
Please provide all of the information requested above. No specific form is required to provide CURE with notifications of possible infringement. However, it will take CURE longer to process your notice if any of this information is not provided, and in some cases, we may not be able to process your notice.
By mail: Citizens United for Research in Epilepsy 430 W. Erie, Suite 210 Chicago, IL 60654